Healthcare

Expanding the Impact of Community Engagement

(November 2012) We’re pleased to be part of a ‘knowledge exchange’ with Lancaster Universtiy and to have held a stakeholder event of some who have initiated community engagement events around end of life conversations and care in the Northwest. Stay tuned for a resource to support other communities planned for the Spring!

Compassionate Communities Final Report July 2013

Engaging Communities Using An Asset-Based Approach (October 2012) A full workshop session of our community engagement approach and initiatives using an asset-based approach was presented at the 19th Annual Congres du Palliative Care, Montreal, Canada. For those who truly want to be inspired, see also the plenary closing talk by Balfour Mount (purchase the DVD here).

Please note that audio recordings of most presentations can be purchased through Swordfish.

The 20th edition of the Congress will take place from September 9-12, 2014 at the Palais des Congrès in Montréal, Canada.

Delivering a public health initiative around end of life conversations and care (August 2012) In June 2012, Katherine Froggat, International Observatory of End of Life Care Lancaster University, Lancaster, presented Conversations for Life outcomes at the 7th World Research Congress of the European Association for Palliative Care (EAPC), in Trondheim, Norway.

View the poster ‘Conversatons for Life: Implementation of a pilot public awareness campaign about end of life issues’ here.

Gaining multi-staff awareness and team support for advance care conversations (July 2012)  According to the National End of Life Care Strategy and a recent Northwest Scoping of End of Life training for health and social care staff, all staff must become more comfortable with their role in advance care conversations and end of life care if improving care of the dying is to be achieved.

As part of strategic interventions, to date more than 200 staff representing multiple services (see below) have attended our 1 day “Simple Tools to Start the Conversation” sessions focusing on supporting staff to overcome the fear of talking about death and dying in order to improve patient care and provides tools to assist them to begin to apply what they learn personally and with those in their care as a result. Sessions have been commissioned by GMCCN, NHS Manchester, NHS Salford, NHS Trafford, Pennine Care Foundation Trust, MacMillan and others.

Multi-service staff attend each session, providing greater awareness and wisdom shared, while supporting end of life, palliative care, and care pathway (LCP, GSF, PPC) interventions and projects.

Compassionate Communities…..How to Begin (June 2012) The evaluation of the national Dying matters week in one region in March 2010 identified the need to engage with the community as an ongoing initiative rather than just a one week campaign every year. Merseyside Clinical Networks Palliative and End of Life Care Network, local hospice and voluntary leads and community organisations partnered together to engage their communities. Mary Matthiesen, Director of The Conversations for Life programme provided materials to support them, facilitated local engagement events, produced summary reports / action plans and delivered follow up sessions based on mobilizing the existing strengths in these communities. Local hospices or community volunteer agencies including VCA Wirral, Halton Haven Hospice, Liverpool PCT /Marie Curie Hospice, Liverpool, Queenscourt Hospice, Southport, Western Cheshire PCT/Hospice of the Good Shepard, and Woodlands Hospice championed the initiative in their communities.

135 community group leaders have been engaged across 6 localities. Self-directed, community-led awareness initiatives are underway. Outcomes were presented at the International Society of Advance Care Planning & End of Life Care and published in the BMJ Supportive & Palliative Care Journal (June 2012).

Excerpt from “One Woman’s Choice” (c) 2005

“I guess I’ve known I was coming to the end of my life, but I was avoiding it. I don’t want to struggle anymore.” My mother was speaking from her heart and I was listening.

It was just an ordinary day when my mother and I had the most important conversation of our lives. She was chronically but not terminally ill at the time, we did not speak about advance directives, and she was not asking for physician-assisted suicide. Yet to my profound awe, 10 days later, she died at home.

The following days were a mix of emotions and more, entering the most profound process of her life on her terms.

It took a team to support her wishes.

It took her courageous knowing and choice to call us all to what was needed most

Read the rest of this entry »

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